Happy New Year!

There will be no post tonight as we are celebrating.  Happy New Year!

Separation Anxiety Gone Wild

Separation Anxiety Gone Wild

Separation anxiety is an ongoing issue in our household. When the school year started my son had a terrible time separating from me and attending school. It didn't help that we had moved and were in a new school. 6 weeks into the school year, my son started to settle down.

To help with his transition I supplied many photos of myself. Ironically, the one he liked the best was the one where I was wearing sweat pants with crazy hair and washing dishes. Ok, I don't think any modeling agencies will be contacting me soon.

None of the above really surprised me as it seemed to fit nicely into our normal craziness. Separation anxiety is nothing new for us. What surprised me was the follow up from my therapist. She told me, “when mom disappears, all of mom's rules disappear too”.

Huh?

Wow, what a powerful statement. When I disappear, ie am out of sight, then all of my rules and training are also up for grabs? Wow. I'm almost speechless. No wonder my son has so many problems remembering to share, to use nice words, to follow the rules. What rules? There are none if I'm gone.

These days we've stepped up the separation anxiety work. I often ask my son where I'll be when he is at school. If he can mentally place me somewhere then there is no separation … or at least a weak link to me. If he can place me, than my rules stay in place.

To help strengthen this skill we continue to play “peek a boo” at random times. A little bit at bath time with the towel, a little bit at coat time with a coat, maybe a hat. These little reinforcers throughout the day make more impact than a big exercise.

As my son continues to adjust to first grade this year, I feel like I am learning as much as he is. When he struggles with rules at school I realize how much I have to reinforce at home. When he struggles to complete a task, I realize how weak his motor planning skills are. When he struggles, I struggle.

We continue, we continue, we continue. I know there is an end to this one day but for now, we continue.

Not Quite Calm

Not Quite Calm

With the holidays and the lack of schedule it has been surprisingly calm at my house. No major meltdowns until just the other day. Sometimes I forget about the post-Christmas letdown. It's like buyers remorse. It doesn't matter how fantastic of a deal you got, after you still feel letdown. The couple of days after Christmas is like this for my children.

Our morning started out mostly typical but my son had been getting up a little earlier each day. For us this is a sign of bad things. We always monitor his sleeping closely. During the week of Christmas I also had some visits from my son in the middle of the night. Hmm. Not enough for us to have to put a solution in place but enough for us to monitor closely.

Regardless, our morning started out mostly normal with the exception of my son getting up at 5:45am instead of 6:30. Yes, 6:30am is as late as it gets in my house. My son also woke with a cough. Coughs are huge worries for us as they can quickly escalate into asthma emergencies. Time for t.v. and a double shot of medication. We take all nebulizer treatments while watching tv because they bother my child so much and they take so long. A double shot (technically two medications given at the same time) usually takes about 30 minutes to administer.

My son almost immediately starts reacting to the medication. He is pulling my hand, squeezing, fidgeting and unhappy. He is having a tough time. If I were to get up and leave the couch, my son would dump his medication onto the floor. (Something I discovered the hard way.) I don't understand why it is so hard for him or why so many children with sensory issues or mental issues have so many problems with this medication. With some screaming, we make it through the medication. Whew!

Next comes the herculean task of breakfast. I make that ever nutritious selection, Eggos. (Ok, not nutritious. Go away food police.) Somehow there is another meltdown. The waffle was overcooked, undercooked or simply present. I'm unsure what the offending waffle did but it was unforgivable. Meltdown.

Onto the stairs my son goes while my daughter eats all of the cooked waffles. (Damn it, I was hungry.) We calm down and ramp up. Calm down and ramp up... over and over. We cannot stabilize or maintain. When we escalate to screaming and hitting the walls I give the melatonin. Thirty minutes later I have an upset but in control child. One I can talk to and reason with. We have cooked new, inoffensive Eggos and the world is ok if not stellar. I monitor my son all day but he is fine.

What a crazy day.

Sensory Games for Everyone

Happy Holidays – Some sensory games for everyone!

With the holidays come two blissful weeks of vacation from school for my children as well as candy, pie, family events and of course, Santa. While we always look forward to this exciting time, two weeks off and lots of excitement can be challenging for both of my children. We have survived pretty well up until now, but suddenly the presents are open, the pie is gone and there is still a week of free time left. What will we do?

To help take the sensory edge off of my children, we tried a few new things this season. First we have a sensory bucket. In past winters I would make a “sandbox” of sorts for my children. I purchased an amazingly large plastic container with a good lid, bought 5 lbs of rice and 5 lbs of beans (added any small pasta or such I had around the house) and wa-la, and instant sand box to hide toys in. Well, last year my kids refused to play with it (and let's face it, it's pretty big). This year, I have a small bucket (previously a canister for sugar) and it contains a much smaller amount of the same things listed above. I've hidden several very small toys like miniature Star Wars figures or Zoobles and the children must find 6 – 10 items before they can have whatever treat they have asked for. They also must hide the items for the next child. I find this to be small, easy and fast. A great way to get some minor sensory interaction for my kids.

I also convinced my hubby to cut a carpet square for me. Turned upside down, the kids can use this to scoot and slide across the laminate floor. Since the carpet part is face down, there is no damage to the floor.

Other ways I get some activity into my kids is to leave the house. Sounds simple, I know, but it's harder that you'd think. When my son needs sensory input the most is when he desperately wants to stay home. I will create some errand or task and send the kids to put on their boots and coats. Fighting ALWAYS breaks out and they are sent to the garage to wait for me. What is in the garage? A scooter and some balls. Magically, it takes me a long time to get out there. In the meantime my kids will play while waiting for me. (BTW, this works before school too. My kids always want to sled when it's time to go to school but not if we have an extra 10 minutes in the morning. I just plan in extra time now.)

Some additional ideas that have worked for me in the past:

- freeze small toys in ice. You will need paper cups. Fill 1/3 with water and freeze. Add toy and 1/3 of water. Freeze. Add last 1/3 and freeze. Then give your child a plastic bin and a wooden spoon and let the beat the toy out of the ice.

- Make cookie pies. I give my children cookies or graham crackers and some of the squirt icing from the store and let them make houses or just play in the mess. I always do this on a cookie sheet so that it is easy to clean up.

- Measuring stuff. Ok, this one is messy. I will give the kids either water or dry goods like oatmeal and corn meal (don't mix wet and dry unless your crazy). Then I give them bowls, spoons and measuring everything. This is an incredible mess but can keep the kids busy for hours. Sometimes it's worth the mess.

Good luck everyone, and Happy Holidays!

Needing a Clue Card

Needing a Clue Card

November 13, 2010

Yes, I am needing a clue card right now. My son is... well, not right. He is not melting down. He is not raging. He is going to school and playing with friends. Why am I not happy? Why? Because, he is not right.

My son is having trouble focusing. He is talking out of turn at school. He is touching and handling everything. It's like his sensory problems are running crazy but muted. What the hell is going on?

Ok, it's driving me crazy. I'm an expert at my children, particularly my son and his many issues, but this one has me confused. He is unfocused which is pretty unusual for my child. His senses are out of whack but not wildly out of whack. He continues to sleep without the help of melatonin. His asthma is in control.

On the other hand, my son will run around and stick his hands in raw hamburger. (So far I've caught him everytime before he has stuck his hand in his mouth.) He touches everything on the kitchen counter. On the other hand (yes, I have three hands) he uses his words to get gum or chewy stuff to cut down on issues. The babytalk has not reappeared. I'm lost.

I suspect others have been in the same situation that I am. You know that something is not quite right with your child but you don't know what. I feel like my son might have the beginnings of the flu or ADD or … I don't know, a tapeworm, SOMETHING. We're at the beginning of something, I just don't know what. Maybe I'll never know. Maybe my mommy-spidey senses will conquer this problem and it will just disappear.

In the meantime, we are playing sensory games. Gum has become a daily item in our house. I purchased the old fashioned, tough bubble gum today. According to my therapist it counts as heavy work. I also picked up Starburst and Carmels. Both are very chewy for my kid. In addition, I used spray icing, graham crackers and plastic plates for dessert tonight. Both my kids thought it was “so cool” to get icing to both play with and to eat. The graham crackers were just extra. My son didn't eat a lot of the icing but he did play with it. Maybe this new texture will help him integrate.

My detective work continues...

MIL - again

November 11, 2010

It has been so many days since I've written. My MIL who recently moved to the area has not been doing well. On Friday, I was at her place for several hours because she was having a lot of difficulty breathing. We discussed going to the ER repeatedly but the doctor kept telling us that as long as her oxygen numbers were above a certain level that we should wait. For 6 hours we waited. Finally the medication took hold and her breathing eased. Everything was starting to look ok.

Saturday was the birthday party for my twins. I checked in frequently but my MIL continued to do ok.

Now, Monday. *sigh* At 8:30am I get a call from the Assisted Living place. “Are we taking MIL out? Is she going home on this day?” Why would she go home? “MIL has explained that she has to get home. She has many household things that need her attention.”

9:00am Monday. A call from MIL left on the answering machine. “I have to leave the Assisted Living place. (note the “have to”) Can you bring something for me to pack in? I'm planning to stay with you until you can take me home.”

9:45am Monday. I arrive at the A.L. After dropping my kids at school. I unpack her while explaining that she does not “have” to go home... but it's ok, she explains because she needs to go home anyway. Mmm, no. I reply, “ but you need to be healthy for more than 2 days before you can go home. Just Friday you asked to go to the ER because you were having problems.”

“I was having problems? I think your confused. I didn't ask to go to the ER!” At this point I stopped and looked at her... really, really looked and there was not a bit of guile in her face. She didn't remember the problems from Friday or the calls to the doctor or the decisions to go to the ER vs. not go. She didn't remember. Wow.

We've known for a bit now that my MIL suffers from mild dementia but nothing serious. Well, surprise, serious has just entered the building. With her breathing problems and difficulty maintaining her weight (she is too skinny) her dementia can spiral out of control in just a few seconds.

Moving forward to yesterday and today. Breathing problems come and go with MIL but progressed to pneumonia in one lung yesterday. Today, it took over the second lung. By 8:00am I was on the phone again talking to the A.L. place and leaving messages for the doctor. By 9:00am I was again thinking ER. By 10:00am medicine had kicked in and things were getting better.

By 11:00am, I was exhausted.

I would like to say that I have some words of wisdom. Something to share with others who might be in this same situation, but right now I am just getting through from day to day. I'm hopeful that tomorrow will not bring another 8:00am call. I'm hopeful that I can sit in my pj's and catch up on the laundry. Someday I will have the time to ponder how I've spent my life but right now I just want to drink my glass of wine and go to bed.

Ah, what will tomorrow bring?

The Birthday Weekend

The Birthday Weekend

Nov 7, 2010

Sorry for the multi-day disappearing act. It was a crazy weekend.

Saturday we held the birthday parties for my twins. Girls went to Monkey Joes and boys went to Chuck E Cheese. Now, I have to take a minute to plug CEC. Wow, what a fantastic job they did! We tried for very small birthday celebrations this year and wound up with 5 children per party including the birthday child. CEC quoted us a per child price, regardless of party size. It included tokens and pizza and a balloon and crown for the birthday boy. It came to a killer $65 bucks. A fantastic deal.

Monkey Joes didn't have parties for under 8 children and they started at $200. If I wanted, I could add pizza to that. Seriously? We didn't throw the official party at MJ's, just went to play. In all, my daughters party still cost more and was less cool. She didn't notice, but I did. That'll be our last party there.

Back to the crazy life that is ours. Perhaps you notice this with your children too. My son woke up disregulated. After all, it was a party day and the excitement of the party day almost ruins my kid. In my house, we have the classic signs: walking on tip-toes, baby voice and touching everything... and I mean everything. I have to keep raw meat off the counter while I'm cooking because my boy will come to touch it.

The parties didn't start until 2:30 and I have to say, I was impressed with my kid holding it together. Well, mostly holding it together. Pooping our pants is a sure sign of stress in our house. It's also just disgusting. By noon we had pottied and gotten cleaned up. All ok. By 2:00 we were out the door with daddy for our birthday party.

I have to say, the party couldn't have gone better. My son love the ticket chasing machine (I don't know what it's called!) He caught so many tickets he started shoving them in his mouth. How I'm sorry I missed this one! Games were played and pizza was had. A great day.

Meanwhile, at my daughters party we had a parody of “Heathers'. I swear I've never seen so much drama in my life and she's only 7. With 5 girls there is an odd number and always a fight brewing. We braved 3 fights in the 2 hours and lived to tell the tale. Over the next few days I'll spin this story so that my daughter had the best birthday. It helps that they are 7 and very trusting.

Anyway, the evening was not as good as the day. My husband and I both recognized that my son could not calm down. He could not sit or focus. He could not be still. Not good for bedtime. An hour before sleep I gave him 1 mg of melatonin. Our first in quite a while and started the bedtime routine.

Nope. Not happening.

I got my daughter into pjs and bed while my son melted down. Screaming, screaming, screaming. Possibly more screaming, I lost track.

Good news? I wasn't surprised. I was prepared. I knew my kid had too much in him. I know my kid needs to scream. I let him.

This might sound strange to some people and I have to tell you that I sent my husband on a fools errand so that he wouldn't be home for this because he hates the screaming, but I knew my son needed to scream. I put him in bed and laid on him.

Yep. Laid on him.

I had a therapist tell me this was a good idea. I was astonished. For me, this is a bit of a last resort. This is when my kid is so out of control that I have to hold him down but I know he needs me near him. How is this a good idea? My substitute therapist said “You are using your body to calm your child. Your child needs your physical presence to calm. This is a great thing.” Damn, I'm smart and didn't even know it!

Back to my son. After about 5 minutes he calmed. He was screaming at me... well, several unpleasant things, but it eventually ended in ...'and I'm hungry'. Poor baby, I'm sure he was hungry. CEC pizza was at 4:30. It was now 8:00.

A glass of milk and some Ritz crackers got us through the rest of the night and the birthday really was great. Whatever will next year hold?